What was a day like at Children’s Mercy Hospital?

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Each day began about the same.

  • Hannah got to order her own breakfast. It was always french toast.
  • A group of 6-8 doctors came in
  • One always briefed the others about Hannah’s symptoms
  • They all took notes, some asked questions
  • Then we waited to meet with Dr. Kessler

They delivered a large dose of steroid by infusion every afternoon between 3 and 4pm. We always wondered why this couldn’t be done in the mornings. It always seemed to wake Hannah up just in time for bed … 🙂

Mom stayed in the room only to leave to take a shower in the Ronald McDonald hospitality room at the hospital or go to the cafeteria to grab a bite to eat.

Dad wandered the hospital from time-to-time, but stayed close by.