Hannah had some blood drawn last week at the local hospital, and we got a report today from Children’s Mercy that her arthritis count is back to normal.
Hannah and “R” have been back at school this week and karate, so haven’t had much time to work on their rainbow looms, but I’m sure by the time this weekend comes around, they’ll be back at it again.
Hannah had a birthday this weekend.
One of her presents was a rubber band neclace/bracelet loom. She was so excited after opening this present from Grandma “K”. It was a huge hit!
Over the past few weeks, some neighborhood and school friends had given some bracelets to both Hannah and “R” and now they have their own loom!
We had to buy more rubber bands for Hannah and “R” because they worked on the craft non-stop for almost 2 days! (We even bought a loom for “R” at Walmart.) Hilarious!
Mom and Dad made a few bracelets, too. This is what its like to “stop and smell the roses”.
Hannah has been symptom free from her Systemic JIA since we were called to Childrens Mercy Hospital over a month ago.
Hannah and her sister made a pine cone bird feeder project in the driveway this afternoon.
Hope you like it.
We made it back safely from Thanksgiving!
All our planning worked, the Anakinra stayed cool while we traveled.
We delivered the injections every morning, and tried to stay on schedule like we do during the week at home.
Hannah ran and played with her cousins at G-Grandpa’s house, you would never know she was diagnosed with Systemic Juvenile Idiopathic Arthritis (Systemic JIA) and literally bedridden a month ago. We stayed at the hotel and swam in the pool both Wednesday night and Thursday afternoon/evening while Mom and Dad enjoyed the hot tub. She jumped in the pool with her cousins for several hours on Thursday. It was like she was back to normal, just like before.
We are still glad to be back home!
The holiday weekend travel was a challenge because we had to figure out a way to take Hannah’s medicine with us for Thanksgiving.
For those of you who know about Anakinra, you have to keep it refrigerated, so we were not sure how we were going to travel without a refrigerator in the van.
We ended up finding some toothbrush containers at Dollar Tree that were large enough to hold Hannah’s Anakinra shots. So we prepared several shots ahead of time to take with us.
We put the toothbrush containers inside a plastic Glad storage container, and set it on top of some frozen water bottles in a travel cooler. That should keep the medicine cool enough while we travel.
