Category Archives: Hannah’s Daily Blog

Blood work is normal!

Hannah had some blood drawn last week at the local hospital, and we got a report today from Children’s Mercy that her arthritis count is back to normal.

Hannah and “R” have been back at school this week and karate, so haven’t had much time to work on their rainbow looms, but I’m sure by the time this weekend comes around, they’ll be back at it again.

Happy Birthday!

Hannah had a birthday this weekend.

One of her presents was a rubber band neclace/bracelet loom. She was so excited after opening this present from Grandma “K”. It was a huge hit!

Over the past few weeks, some neighborhood and school friends had given some bracelets to both Hannah and “R” and now they have their own loom!

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We had to buy more rubber bands for Hannah and “R” because they worked on the craft non-stop for almost 2 days! (We even bought a loom for “R” at Walmart.) Hilarious!

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Mom and Dad made a few bracelets, too. This is what its like to “stop and smell the roses”.

Hannah has been symptom free from her Systemic JIA since we were called to Childrens Mercy Hospital over a month ago.

Travel was a success!

We made it back safely from Thanksgiving!

All our planning worked, the Anakinra stayed cool while we traveled.

We delivered the injections every morning, and tried to stay on schedule like we do during the week at home.

Hannah ran and played with her cousins at G-Grandpa’s house, you would never know she was diagnosed with Systemic Juvenile Idiopathic Arthritis (Systemic JIA) and literally bedridden a month ago. We stayed at the hotel and swam in the pool both Wednesday night and Thursday afternoon/evening while Mom and Dad enjoyed the hot tub. She jumped in the pool with her cousins for several hours on Thursday. It was like she was back to normal, just like before.

We are still glad to be back home!

Getting our daily shot before our Dr. appointment

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Heading back to Kansas City today for a follow-up appointment with Dr. Kessler.

Got checked into the Rheumatology Clinic and Hannah is prepared with “Pink Bear” and “Leppy”.

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They drew blood today to make sure the daily shots are working properly.

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The blood labs came back normal today!

Dr. Kessler said when we came in the first time, her arthritis blood count was 47, and normal is 0-13 … Hannah’s count today was 18.

Dr. Kessler said that we are going to start a schedule to reduce her daily Prednizone dose. Yea!

Mom and Dad were giving high-fives all the way back to Topeka!